We almost boycotted Halloween. Cole can't go outside. He can't have candy. He doesn't understand the concept of Halloween yet. So we were just going to skip it.
I think we had images of Thanksgiving in our mind, from last year. Cole started seizing in the car on our way to the family party. We stopped in the driveway, Brian jumped out of the car and rushed an explanation about why we were backing out, and we headed home. Cole stopped seizing on our way back. This is when he could actually be outside and was not yet sensitive to light. Eventually, I took care of the post-ictal boy and sent Brian back to have a little quality time with his family and he brought me home some food. YEAH, we didn't want to have another holiday like that ever again. However, this is our life and the stress and excitement that comes with holidays inevitably brings on seizures. BUT - remember that goal to be more normal? We chose to make the best of things this year. We let Cole answer the door 5 times, and that probably was a little much, but he was having so much fun! so much excitement in Cole.We took something we already had, the SPIO suit and just built on it. I ordered a snorkel mask and fins that he can eventually use in grandpa's pool and we had a bona-fide scuba diver! We asked some good friends if we could bring Cole over to their house and they could give him some small toys that I had purchased. They went above and beyond and purchased some of their own ;)Here is Cole saying, "Happy Halloween!", just like we had been practicing all day.So yes, our fall was not that fabulous. It did not include hay rides, pumpkin patches, corn mazes, costume contests, pumpkin carving, apple picking, cider drinking, cookie making, parties, or adorable pictures in the leaves. But last night, thanks to some special people, Cole experienced Halloween...in his own special way.