I have been in the throes of medical records again. When you see a new doctor, they always want to know what has been done in the past, what meds, what tests, etc. etc. Digging through the last 6 years has been sobering. What Cole's body has been through, the meds that he has tried, the hospital admissions...it really is too much for anyone that hasn't even entered Kindergarten. However, I look back and see how strong we are. We should have had at least two nervous breakdowns by now!!! :)
So, for the future and to be able to access it quick via the nice, old friend the Internet-I present a history of the treatments tried for my son:
Anti-Epileptic Medications (including atypical treatments)
Versed-rescue (Buccal and Intranasal)
Diastat-rescue (rectal suppository and tablet)
Klonopin-rescue and daily
Low Glycemic Index Diet
Phenobarbitol-rescue and daily
*Note: Some medications are listed twice. This is due to a reintroduction after many years of discontinued use. Rescue meds, used as needed, are also listed.
Nano VM Multi-vitamin
Multivitamin Supplement (Carnation Instant Breakfast)
Treatments and Equipment
Feeding Pump-IV pole, Feeding Bags, Syringes
SPIO-Stabilizing Pressure Input Orthosis
Seizure Alert Service Dog (he really is listed as Durable Medical Equipment in the law)
All equipment required to administer medication-pill crusher, syringes, g tube extension, etc.
Additional Therapies and Treatments
Speech Therapy (also including feeding therapy)
Anat Baniel Method Therapy
Sensory Integration Therapy
Neurology-6 different ones
G-Tube Nurse Practicioner
Bone Health Specialist (Ortho)
I was getting my hair done the other day and I spent the entire time I was "processing" on the phone making doctor's appointments. My friend asked me if I felt like we lived at the doctor. I had to be honest and say, "Yes". Looking at it all listed out is a little overwhelming. I am positive that I have missed something (probably more than just one something). No wonder we are tired! All I know is Cole is worth it. We will keep fighting.